US Health Professionals

APDS Resources

  • Downloads
  • Videos
  • Podcasts
10 Warning Signs of APDS

An overview of the most common signs and symptoms of APDS.

All about APDS Quick Guide Spanish Version

Useful information about APDS to share with your family and doctor.

All about APDS Family Health Tree

Use this worksheet to record your family’s health history.

APDS – Mechanism of Disease

What is happening in my body?

The Patient Journey

Dr Eveline Wu talks through the patient journey to a diagnosis.

A Doctor’s Perspective

Dr Hartog talks about the genetics behind APDS and how it’s diagnosed.

Heather’s Story

Heather is the mom of an amazing 10-year-old daughter who was diagnosed with the rare primary immunodeficiency, APDS. This is her story.

Understanding The APDS Patient Experience Video

This video highlights the variety and severity of symptoms that each person with APDS may experience, and the importance of genetic testing.

Behind the Mystery of APDS, A Rare Primary Immunodeficiency

This video, produced by ‘The Balancing Act’, a Lifetime show, features Tyler and Kaitlyn, a brother and sister who have been diagnosed with APDS.

Clinical Research Trials and You

A podcast for patients on the importance of their role in clinical trials, hosted by the Immune Deficiency Foundation (IDF).

Listen via Soundcloud

Listen via YouTube

Become Your Own Advocate: Learning to Partner with Your Healthcare Professionals

Hosted by Elaine Kulm, a Nurse Practitioner with Kristin, a patient who was diagnosed with APDS as an adult.
This podcast represents one person’s experience and should not be considered as medical advice.

Listen Now

Download Supporting Material

Taking Charge Of Your Care & Learning About The Importance Of Health-Related Quality Of Life In Primary Immunodeficiencies (PIs)

Hosted by Dr Hajjar, a Clinical Immunologist and Allergist, with special guest – Megan, a patient with PI.
This podcast represents one person’s experience and should not be considered as medical advice.

Listen Now

Download Supporting Material

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