Downloads, Videos and Podcasts
Videos and Podcasts
Mechanism of Disease
What is happening in my body?
The APDS Diagnosis Journey
Dr Eveline Wu talks through the patient journey to a diagnosis.
A Doctor’s Perspective
Dr Hartog talks about the genetics behind APDS and how it’s diagnosed.
Heather’s Story
Heather is the mom of an amazing 10-year-old daughter who was diagnosed with the rare primary immunodeficiency, APDS. This is her story.
Clinical Research Trials and You
A podcast for patients on the importance of their role in clinical trials, hosted by the Immune Deficiency Foundation (IDF).
Listen via soundcloud
Listen via YouTube
Understanding the APDS Patient Experience
This video highlights the variety and severity of symptoms that each person with APDS may experience, and the importance of genetic testing.
Downloads
All about APDS Quick Guide
Useful information about APDS to share with your family and doctor.
All about APDS Family Health Tree
Use this worksheet to record your family’s health history.
All about APDS FAQ Guide
A reference for frequently asked questions about APDS
All about APDS Glossary
A useful guide to help understand terms you may hear from your doctor or find in your research.
All about APDS Patient Brochure
A helpful resource for people living with APDS, and their support network.
