US Health Professionals

APDS Resources

  • Downloads
  • Videos
  • Podcasts
All about APDS Quick Guide Spanish Version

Useful information about APDS to share with your family and doctor.

All about APDS Family Health Tree

Use this worksheet to record your family’s health history.

All about APDS FAQ Guide

A reference for frequently asked questions about APDS.

All about APDS Glossary

A useful guide to help understand terms you may hear from your doctor or find in your research.

All about APDS Patient Brochure Spanish Version

A helpful resource for people living with APDS, and their support network.

APDS – Mechanism of Disease

What is happening in my body?

The Patient Journey

Dr Eveline Wu talks through the patient journey to a diagnosis.

A Doctor’s Perspective

Dr Hartog talks about the genetics behind APDS and how it’s diagnosed.

Heather’s Story

Heather is the mom of an amazing 10-year-old daughter who was diagnosed with the rare primary immunodeficiency, APDS. This is her story.

Understanding The APDS Patient Experience Video

This video highlights the variety and severity of symptoms that each person with APDS may experience, and the importance of genetic testing.

Clinical Research Trials and You

A podcast for patients on the importance of their role in clinical trials, hosted by the Immune Deficiency Foundation (IDF).

Listen via Soundcloud

Listen via YouTube

Become Your Own Advocate: Learning to Partner with Your Healthcare Professionals

Hosted by Elaine Kulm, a Nurse Practitioner with Kristin, a patient who was diagnosed with APDS as an adult. This podcast represents one person’s experience and should not be considered as medical advice.

Listen Now

Download Supporting Material