Pharming Healthcare, Inc. – Stay updated with the latest information about APDS by registering here: allaboutapds.com/signup
Genome Medical – Provide genetic counseling services. Learn what you can expect from genetic counseling and how genetic counselors can help you.
https://www.genomemedical.com/
ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world. It is a resource provided by the U.S. National Library of Medicine.
clinicaltrials.gov
IDF Immune Deficiency Foundation – Learn about primary immunodeficiencies, treatments, awareness, and advocacy.Connect with other patients and caregivers to share your experiences.
primaryimmune.org/resource-center
Jeffery Modell Foundation – Access patient friendly e-books and other information about primary immunodeficiencies, find doctors and connect with other patients and caregivers.
info4pi.org
IPOPI – International Patient Organisation for Primary Immunodeficiencies. IPOPI is a non-profit international organisation and the leading advocate for primary immunodeficiency patients worldwide. Dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency patients worldwide through global collaboration.
ipopi.org
Global Genes – Find other patients with rare diseases, access information and resources, connect to researchers, and learn to advocate.
globalgenes.org
Rare Revolution – Hear from other people affected by rare diseases about their experiences and the groups that support them.
rarerevolutionmagazine.com
